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Golden

Diagnosed on December 18, 2007 at 6 months old with high risk multifocal Langerhan's Cell Histiocytosis (LCH) with skin, bone, bone marrow, spleen, and liver involvement.

That was the day we were told he had a 50% chance to survive another 3-6 months. I will never forget that date. Another date that I will never forget is May 12th. That was the day it was determined that Golden's initial chemotherapy treatment had failed, the LCH was growing again and he would need high-dose chemotherapy to have a chance to survive. Golden now has high-risk, refractory multifocal LCH.

His diagnosis means so many different things to us. Basically, that nothing is what we thought it is or was. That your worst nightmares do, in fact, sometimes come true. That there is a significant chance that things could go unfavorably wrong. It also means that we are among the luckiest parents in the world. To know someone so small yet so strong and to truly cherish all the little things and fleeting moments.

To people who want to help I would say please do! LCH is considered an orphan disease because it is so rare and there is no government funding for research. To people who want to get involved I would say listen, learn, and understand. Also, in a larger sense, to think outside of yourselves and your day-to-day trivial problems and see that you have a good life that mostly only has problems and situations that you can choose to improve.