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Pierce

Who would ever dream that a persistent fever would lead to a diagnosis of High Risk, Stage 3 Neuroblastoma, resulting in 5 cycles of high dose chemotherapy, 4 surgeries, 14 rounds of radiation, 5 cycles of immunotherapy with high doses of Accutane (yes, that Accutane), and ultimately the loss of our son's life? This is the nightmare that started for our family on August 26, 2008. Our son, Pierce Phillips was born July 30, 2007. Pierce was an easy-going child and people often referred to Pierce, as an "old soul" because of his demeanor and captivating eyes that seemed to be full of wisdom. Pierce enjoyed riding his fire truck, watching Shrek, and hanging out with his mommy and daddy.

Pierce received treatment at Memorial Sloan-Kettering Cancer Center in New York. After these aggressive treatments, Pierce achieved NED status no evidence of cancer was detected. We spent the next few months at our home in Oklahoma with our healthy son and enjoyed the simple everyday events as every parent should be able to with their child. Unfortunately, Pierce's disease was lurking undetected and returned, which was found during an emergency bowel resection surgery, only a few months after finishing high dose chemotherapy and radiation. We returned to New York once again to stop this beast of a disease. The salvage chemotherapy offered had no effect on his disease it progressed, and he developed another bowel obstruction within weeks of having bowel resection surgery. At this point, the Neuroblastoma had affected Pierce's vital organs and we were forced to make a decision that no parent should ever have to make. With no options left for Pierce, we decided to stop treatment, which was advised by the top doctors in this field, and took him home to enjoy every minute we could loving Pierce in his final days. In the arms of his mommy and surrounded by family, Pierce earned his angel wings on October 9, 2009.

Pierce was truly a one-of-a-kind child and in a short time touched many lives. Pierce taught us the true meaning of courage and strength. Pierce took on life with a smile and even in the toughest of battles he gracefully handled each journey.

This disease can't be won by a few, it will take all of us pulling together for these children. The drug companies are not developing medication specifically for our children, so it is up to us. We have to be the voice for the most innocent of victims to cancer. Please host a bake sale in your town, at your church, shopping mall, or anywhere you can think that will draw attention to such a great cause, KIDS just wanting a chance to have a great life.