Our son Ty was diagnosed in May 2008 with stage 4 neuroblastoma. He was
only 16 months old at the time and has since endured seven rounds of
high dose chemotherapy, an Autogolous Bone Marrow/Stem Cell Transplant,
27 rounds of radiation and had surgery to have his tumor removed. In
addition, he has countless blood and platelet transfusions, countless
MIBG,CT, and x-rays, as well numerous bone marrow aspirates and
Ty is our little fighter and has never shown any signs
of slowing down, even throughout this entire ordeal. He is so strong and
continues to "power through it" with a smile on his face. We are
blessed to have such a wonderful, loving, and active little boy and know
he will beat this cancer!
Ty is now 5 years old and had been
receiving his treatment through Stanford Hospital in Palo Alto,
California. However, due to the last part of his clinical study closing,
we were referred to Memorial Sloan Kettering Cancer Center in New York
to receive an antibody called 3F8, which has shown promising results.
From March 2009 to March 2011, we flew coast to coast for his treatment.
The 3F8 antibody is an extremely painful treatment that Ty had to
endure once a month, provided he was HAMA negative. While in New York,
Ty also endured an experimental treatment on his lower left leg, which
still showed active disease in February 2010. The procedure involved a
small incision made in his left leg and then injecting liquid nitrogen
in the area, to freeze the disease.This process is commonly used in bone
cancers but not on neuroblastoma. Ty was the third neuroblastoma child
at Sloan Kettering to receive this procedure which was successful!
of April 7, 2010, Ty is officially "no evidence of disease" and Ty
finished the 3F8 protocol in March 2011. We made about 15 trips to New
York over the course of two years.
Please keep Ty in your prayers so he can remain healthy, happy, and remain no evidence of disease!