Golden was diagnosed on December 18, 2007 at 6 months old with high risk multifocal
Langerhan's Cell Histiocytosis (LCH) with skin, bone, bone marrow,
spleen, and liver involvement.
That was the day we were told he
had a 50% chance to survive another 3-6 months. I will never forget
that date. Another date that I will never forget is May 12th. That was
the day it was determined that Golden's initial chemotherapy treatment
had failed, the LCH was growing again and he would need high-dose
chemotherapy to have a chance to survive. Golden now has high-risk,
refractory multifocal LCH.
His diagnosis means so many different
things to us. Basically, that nothing is what we thought it is or was.
That your worst nightmares do, in fact, sometimes come true. That there
is a significant chance that things could go unfavorably wrong. It also
means that we are among the luckiest parents in the world. To know
someone so small yet so strong and to truly cherish all the little
things and fleeting moments.
To people who want to help I would
say please do! LCH is considered an orphan disease because it is so
rare and there is no government funding for research. To people who want
to get involved I would say listen, learn, and understand. Also, in a
larger sense, to think outside of yourselves and your day-to-day trivial
problems and see that you have a good life that mostly only has
problems and situations that you can choose to improve.