Giulli

Giulli

On December 28th Giulli started not feeling well so we went to the pediatrician. He said she looked great but wanted us to admit her because she wasn't drinking and she was having diarrhea. So we did and later that day labs were drawn. They were off. Not extremely high - but not exactly "normal". Her white count was 15,000 - so the doctors tried to figure out what was causing it. She was tested for everything and anything. She had spinal taps, blood draws, x-Rays, ultrasounds and scans - all without sedation. Nothing was found. They consulted with the university and decided to send us there to the oncology floor.

All of the doctors (even oncologists) told us they didn't think it was cancer, because she looked great! After a few hours and a bone marrow aspiration, they called us back in. On January 3, 2014 Giulliana was diagnosed with standard risk acute lymphoblastic leukemia (ALL) and began treatment the following day. She has received a dozen spinal taps with intrathecal chemo, IV chemo, oral chemo, bone marrow aspirations, two surgeries for line removal and line replacement.

On January 16, 2014 she went into remission - her marrow had less than 1% blasts. She had to repeat a phase in her treatment because in the 1% there was still a little leftover leukemia (mrd) and she also repeated some chemo's and had another bone marrow aspiration to help prevent relapse.

On June 16, 2014 Giulliana was officially cancer free! Her bone marrow came back negative for any leukemia cells! It has been 1 year 3 months and 17 days since her diagnosis. And 10 months and 2 days since was officially cancer free!

Giulliana still has 14 months of treatment left and she will take oral chemo daily as well as monthly IV chemo and spinal taps with intrathecal chemo. She will also receive steroid pulses.

We cannot wait for the day that she is done with chemo. The word "cured" doesn't come into the picture until 5 years from the day she is done with treatment. Thank you all so much for your thoughts and prayers. We couldn't do it without you all.